Muscular Dystrophy Association

  www.mda.org
  www.mda.org
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MDA is the nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

 

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The Muscular Dystrophy Association (MDA) is the nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.

MDA was created in 1950 by a group of adults with muscular dystrophy, parents of children with muscular dystrophy and a physician-scientist studying the disorder.

MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education. With national headquarters in Tucson, Ariz., MDA has 120 local offices across the country, sponsors 200 medical clinics and supports some 300 research projects around the world. The Association's programs are funded almost entirely by the voluntary contributions of concerned individuals and cooperating organizations.

Some of MDA's special events and volunteer opportunities include:

  • MDA Lock-Up®
  • Shamrocks Against Dystrophy®
  • Fill the Boot®
  • Golf Tournaments
  • Muscle Walk®
  • Hop-a-Thon®
  • MDA Summer Camp

Our employees like working at MDA because of our career opportunities, inclusive environment, work-life balance, benefits and culture. By joining our dedicated team, you will experience the gratification of knowing your work impacts the well-being of millions of people — both directly and indirectly — affected by neuromuscular diseases.

Our commitment extends to our employees, and we recognize their need to balance work and personal responsibilities. Some of the comprehensive benefits we offer our employees include:

  • Unlimited internal career paths and opportunities
  • Medical comprehensive PPO plan
  • Dental Plan
  • Vision Plan
  • Flexible Spending Account (health and dependent care)
  • Life/disability/accident/travel insurance
  • Travel reimbursement
  • 403(b) retirement savings plan
  • Paid holiday, personal, birthday, anniversary, vacation and sick days

What is MDA?

Founded in 1950, the Muscular Dystrophy Association today is one of the world’s leading nonprofit health organizations, funding research, health care and support services covering more than 40 neuromuscular diseases affecting more than 1 million Americans.

Active in local communities around the country, MDA is dedicated to finding treatments and cures for neuromuscular diseases, and to supporting the individuals and families affected by these diseases.

What does MDA cover?

The majority of diseases under MDA’s umbrella are caused by genetic factors. All result in progressive muscle weakness. Symptoms can range from mild muscle weakness to complete paralysis of all voluntary muscles, including those used for breathing and swallowing. Among these diseases, the age of onset varies from birth to adulthood, and life span after diagnosis can be as short as a year or as long as several decades.

For detailed information about each of the neuromuscular diseases in MDA's program, visit the MDA Disease Directory.

What does MDA do?

Worldwide research

MDA annually funds some 300 research projects around the world. Thanks to MDA-funded research:

  • disease-causing genetic mutations have been identified for most of the diseases in its program;
  • clinical trials of potential therapies are under way in Duchenne and Becker muscular dystrophies, spinal muscular atrophy, ALS and other diseases;
  • the largest drug discovery project for ALS to date is being conducted at the ALS Therapy Development Institute;
  • optimal care guidelines have been developed for several rare conditions; and
  • a lifesaving enzyme replacement therapy has been developed for Pompe disease.

Health care and support services

MDA’s comprehensive services program helps individuals and their families meet the challenges imposed by chronic, progressive muscle diseases through:

  • a national network of some 200 medical clinics staffed by experts in neuromuscular diseases, including 42 clinics designated as MDA/ALS centers;
  • local support groups and events for individuals and families;
  • assistance locating, obtaining and repairing needed durable medical equipment; and
  • online opportunities to connect, share and learn through online communities, care coordination tools and webinars.

Summer camps

Each year, thousands of youngsters ages 6 to 17 attend a free weeklong accessible summer camp session where they get to be “just kids.”

Public and professional health education

Online and in print, MDA offers a vast library of information about research, clinical trials, health care and daily living strategies. MDA also regularly convenes international scientific meetings and conferences for researchers and MDA clinic directors.

Advocacy

MDA represents the needs of the neuromuscular disease community in matters of public policy and research advancement, and facilitates involvement in these areas by the people it serves.

Community programs

Public awareness programs such as the MDA Art Collection and Personal Achievement Award demonstrate that disability is no barrier to creativity and service.

Who supports MDA?

Designated a “Top-Rated Charity” by the American Institute of Philanthropy, MDA is the first nonprofit to receive a Lifetime Achievement Award from the American Medical Association “for significant and lasting contributions to the health and welfare of humanity.” MDA spends 77 cents of every dollar on its research, services and information programs.

MDA’s programs are supported nationally and in local communities by businesses, associations, organizations, and the care and dedication of countless individual volunteers.

Muscular Dystrophy Association Photos

Muscular Dystrophy Association Reviews

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202 Reviews
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Muscular Dystrophy Association President & CEO Steven M. Derks
Steven M. Derks
71 Ratings
  1. 3 people found this helpful  

    Fired after going through treatment for breast cancer

    • Comp & Benefits
    • Work/Life Balance
    • Senior Management
    • Culture & Values
    • Career Opportunities
    Former Employee - Divisional Operations Coordinator  in  Indianapolis, IN (US)
    Former Employee - Divisional Operations Coordinator in Indianapolis, IN (US)

    I worked at Muscular Dystrophy Association full-time for more than 5 years

    Pros

    I loved the families we worked with. I loved traveling to all the districts I was in charge of. Events were wonderful as well.

    Cons

    No one cares about anyone. After working there for over 6 years I was fired after being on medical leave to treat breast cancer. No severance, no vacation, nothing. Plus they fired me over the phone and promised to help me get short-term disability. That never happened. I was denied repeatedly and finally gave up.

    Advice to ManagementAdvice

    Treat your employees better. I put in 60 hours a week for you, working nights and weekends and was a very dedicated employee. You fired me because I had a disability. Aren't you supposed to help people with disabilities?

    Doesn't Recommend
    Negative Outlook
    No opinion of CEO

Muscular Dystrophy Association Interviews

Updated 3 Aug 2014
Updated 3 Aug 2014

Interview Experience

Interview Experience

51%
27%
20%

Getting an Interview

Getting an Interview

71%
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11%

Interview Difficulty

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  1.  

    Fundraising Coordinator Interview

    Anonymous Employee  in  Chicago, IL (US)
    Anonymous Employee in Chicago, IL (US)
    Application Details

    I applied online. The process took 2 weeks - interviewed at Muscular Dystrophy Association.

    Interview Details

    The interview process was lengthy. Definitely a behavioral interview, lots of situational questions. They allowed me to ask a lot of questions but at the end of the day I felt like they were not up front with me from the beginning about pay and time requirements. I referenced the many reviews I read on glassdoor about the organization and position which I quickly learned turned the tone of the interview...

    Interview Questions
    • Many behavioral questions... tell me about a time when you _____   Answer Question
    Declined Offer
    Negative Experience

Muscular Dystrophy Association Awards and Accolades

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Additional Info

Website www.mda.org
Headquarters Chicago, IL
Size 500 to 999 Employees
Founded 1950
Type Non-profit Organisation
Industry Non-Profit
Revenue £100 to £500 million (GBP) per year

The Muscular Dystrophy Association is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. We do so by funding worldwide research; by providing comprehensive health care services and support to MDA families nationwide; and by rallying communities to fight back through advocacy, fundraising and local engagement. It’s special work powered by special people who give generously.

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