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Muscular Dystrophy Association

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129 reviews
1.0
14 Apr 2022
Recommend
CEO approval
Business outlook

Pros

The feeling of getting out, working for a reputable non-profit, and knowing that no one at MDA has any power over me, or has any part in my life. That's the only positive.

Cons

Where to begin... The board's treatment of the previous CEO was reprehensible. She faced misogyny, belittling, and berating at every turn. The board was a huge problem, my entire tenure. Members of the board were notorious for bullying staff at meetings. The sexism was palpable. And when the aforementioned CEO departed, she was replaced with a board member. And then another board member was appointed chief of staff. That's when everything really fell apart. Bullying and intimidation hit a fever pitch. Staff was regularly belittled and harassed. And then the vast majority of capable talent fled in droves. They stopped announcing departures because it became embarrassing. The chief of staff became obsessed with touting DEI, even though every single person on the executive team was white and fully abled. When new leadership was appointed, they made it crystal clear that it was a new day at MDA, and that the organization would no longer be hiring "expensive consultants the way the former CEO had". And then they did just that. Hired a handful of mystery consultants who would just show up to meetings unannounced. But they didn't miss any opportunity to insult the former CEO, which is tacky, classless, and extremely unprofessional. The activists' deepest fears about MDA are right. It is not the beacon of light for the neuromuscular community it proports itself to be, especially not under its current leadership. And this is a community that needs every bit of philanthropic assistance it can get. I would recommend someone collect government assistance before applying for a job at MDA. Here's to hoping a functional non-profit or hospital system conducts a takeover of the MDA, and course corrects it, before it crashes and burns.

5.0
4 Dec 2023

Making a comeback!

Recommend
CEO approval
Business outlook

Pros

- Great work/life balance - Wonderful focus on advocacy for neuromuscular community and welcoming to a diverse background of people - Leadership is finally open and transparent with staff - The families and community we serve is a cause well worth working for

Cons

- Benefits could be improved but okay for nonprofit

3.0
19 Apr 2022
Recommend
CEO approval
Business outlook

Pros

Challenging work but great staff and volunteers. Well developed plan and goals. Working out of the office or on the road often. Great to have engagement with local families. Good benefits, nice perk of having birthday and work anniversary off as a holiday!

Cons

Fundraising events can be very aggressive for participants and volunteers. Fundraisers and directors are pushed hard to meet goals. Long hours. Staff tends to burn out.

2.0
6 Feb 2024

Bad Managment

Recommend
CEO approval
Business outlook

Pros

Helping to raise funds for research for Muscle Disease

Cons

Management don't care about staff at all.

4.0
13 Sept 2023

Nice staff

Recommend
CEO approval
Business outlook

Pros

Supportive, friendly and knowledgeable staff,

Cons

Not enough work and too many meetings that seemed pointless.

4.0
21 Sept 2021

Pros and cons

Recommend
CEO approval
Business outlook

Pros

Families we served were a delight to work for and seeing the direct impact.

Cons

National staff disconnect between field staff

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Muscular Dystrophy Association Response
4y
Thank you for your feedback, and your 8+ years of dedication to MDA. We appreciate your passion in serving and supporting our families. You’ve seen firsthand 14 drug approvals for our community members in the last six years, and more recently the opportunity for kiddos to attend virtual camp, and for community members to stay connected during the disconnect of current COVID-19 times. Our leadership continues to strive to provide transparent, and open communication for all staff and truly value and appreciate our staff who have dedicated their time and energy to carrying out MDA’s mission. We welcome any additional comments you’d like to share about your experience, please reach out to us at culture@mdausa.org.
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